This is not an easy story, just like so many who face this terrible illness. Our daughter Kyra was born bright, beautiful, and joyful and life was perfect. We had a son of 2 years and this little auburn haired bundle. Time had finally stood still and life was full. We were complete.
It was the throwing up that led us to seek advice; milk allergies? Reflux? When they said, “Your daughter has a brain tumor,” time stopped yet again, we ‘died’ right there, and that began our struggle to get through each moment. Kyra was diagnosed with a very rare tumor called a Choroid Plexus Carcinoma, it was a mass in the fourth ventricle of her brain. I remember the look in the doctor’s eyes that first day and will never forget the fear and sorrow he felt for us.
The journey was rough. I do not know how we got through any of it. Kyra endured months of chemotherapy and stays in the hospital. Unfortunately, Kyra passed away a short 16 months after her diagnosis. There are no words to describe this, as I’m sure so many parents will testify to. May God shine a very special light on all of these children and their families who have to endure such a tough battle. May God bless all those people who support them and honor them. Thank you to The Morgan Adams Foundation for helping our children.
Thank you.
